One thing I have absolutely NO problem doing on my blog or social media is shouting out, partnering, or spreading awareness about/with other group or individuals that are about women’s health in general, or uterine fibroids, infertility, or Black women specifically.
I discovered last year that The White Dress Project started an initiative to recognize July as Fibroid Awareness Month. I found out pretty much at the end of the month, but now that I know, I’m going to kick it off right.
July is Fibroid Awareness Month!!
This is an “unofficial” month of recognition and education on uterine fibroids. Some states have adopted, but there are about 45 to go.
Want to make it a nation wide thing? Sign this petition to send to Washington to make it happen ( I mean….they have a lot going on, but maybe something simple like this can make it through all the BS.)
Use this month to tell your story, make sure you’ve had your yearly visit to your gyn (*ehem* self), change your diet, schedule that myomectomy you’ve been putting off (trust me,you’ll feel 1000 times better!)
This month I’m going to publish Part Two of the Mystery of Fibroids focusing on beauty products as a possible cause or agitator of fibroids, and I’ll be sharing lots of articles and information on fibroids.
Check out the Fibroid Facts page for more information on uterine fibriods
It is Mother’s Day. Again. Last year for Mother’s Day, I unplugged, and I was able to lift my spirits and cross off a major bucket list item by going to see Prince in concert. Alone. It was one of best days EVER!
This year, Prince has passed away, I am still sad about it, and I skipped going with my Husband to brunch with my Mother In Love (Law) because I just wasn’t in the mood. She doesn’t yet know about our struggle, and I just didn’t feel like pretending I was in a good place. I sent my card with my husband.
Instead, I’m home with the cat, listening to Prince, and blogging, which is perfect.
Of course, this week, I’ve been thinking about and dreading Mother’s Day, like many of us Maybe Mamas do. The past month or so, a lot of things have happened on the road to possible motherhood. In April, I had a final hysteroscopy to check out my uterine cavity, to see if the balloon used in the November procedure helped in minimizing/preventing scar tissue. A few days before I went in, my husband and I had a conversation where I questioned if I even wanted to have kids at all. I went on about how our time would not be our own, how all the moms I know (with kids under 5) are so boring now. They’ve completely lost their sense of self. All the money we’d now have to spend on the child’s needs, how uncomfortable and unpleasant pregnancy seems….
But in the next breath, I answered my own question: “But I guess, if I didn’t want to have a baby, I wouldn’t spend all this time and money making sure I could”
“True”, hubby responded.
So I really started thinking: What do we tell ourselves to make this all hurt less? I’ve come to realize my main coping mechanism has been a denial of sorts. I’ve tried to convinced myself that I don’t really want to be a mom. I see all the negatives in parenting: The screaming toddler in Target, the sleeplessness, the projectile vomiting, constant worry if you’re doing right by your child. Never having a life. These things are real, and a part of motherhood, but that’s not all that it is.
I truly have come to terms with the fact that I may never be a biological mother, or a mother at all. I think that is part of the infertility journey. Keep hope alive, but acknowledge all possible outcomes. What I have done over time is beyond that.
I’ve tried to shield myself from disappointment and hurt by trying to convince myself it doesn’t matter. Motherhood is not something I really want.
Its like Cinderella when when she realized she wasn’t going to the ball, despite doing everything her step mother said she had to do. She did her best (for all of 5 seconds) to convince herself that that Ball was going to suck, and she wasn’t missing anything.
But the reality is, I do want to be a mother, and its painful to think that I may never be. Some days, its too much to think about, so I don’t. The best I can do is try to convince myself that like the Royal Ball, Motherhood sucks. Except, much like Cinderella, I’m not doing such a great job of fooling myself.
I chose the title of this post based form Proverbs 23:7, which most people interrupt as a verse cautioning us to be mindful of our thoughts, as they become who we are. Reading the whole verse, and the verses before and after, and other translations, that’s not what is meant at all.
The verse is referring to a person who says one thing out of their mouth, but doesn’t mean it. They invite you to come over, eat and enjoy, but inside, they’re hoping you don’t. The full scripture:
Do not eat the bread of a miser,[a] Nor desire his delicacies; 7 For as he thinks in his heart, so is he. “Eat and drink!” he says to you, But his heart is not with you.
Now, I’m no “miser”, but I am being insincere with my words when I say I don’t really want to have a baby. I say I’d much rather just O and I be the “cool auntie and uncle”, that way we have our time, money (and my body) to ourselves. The ultimate proof that its all bs is not the myomectomy, or the three procedures I’ve undergone to remove scarring (and recently endometriosis), and the months of hormones I took to try to restore my uterine lining. Its not the research I’ve done on adoption. Its the consult we had this past week with a fertility doctor, and the tests we’re about to take, and the IVF journey we are about to start. Someone who doesn’t want it would not bother with any of this.
So on this Mother’s Day, I give myself the gift of acceptance, and permission to feel and experience all of the emotions that come with this journey. Some days are hopeful. Some days are depressing, and that’s OK.
Its OK to want something that seems just out of reach, and its OK to feel the creep of that green-eyed monster when it seems everyone else but me is enjoying that which is illusive: Motherhood.
I want to give this gift to you too. My sisters in this battle. Give yourself permission to feel how you feel, today and everyday.
Most people’s holiday seasons are filled with family, food, drinks, and relaxation. Mine had some of that, but also included hysteroscopy, estrogen, moving, and bed rest.
In short, I’ve been having issues with my cycle, and my RE and gynecologist both suggested going back to my surgeon to get a better look at what is happening. My GYN suspected Asherman’s Syndrome.
The Monday after Thanksgiving, I went in for a laproscopy and hysteroscope. The surgeon did find some scar tissue that formed since the last procedure and removed it. He also found a tear that he repaired. I was put on a two month regimen of low dose estrogen (to be followed by 15 days of progesterone) to help restore my thinned lining. He also inserted a cook ballon to try to minimize scarring and adhesion inside my uterus. I had to keep the balloon in for 7 days. It was not the most comfortable thing in the world. I went the office the following week to have it removed. Having it taken out was uncomfortable more than it was painful.
The estrogen so far has given me headaches (the first week or so), and had my face broke out like I was 13. Right now, nothing major in terms of side effects, but the first two weeks…….
The procedure seemed to go pretty well, and I recovered well that day, but I didn’t bounce back like I thought I would. When I had this same thing done in 2013, I flew out to Atlanta the next day for work. Was I 100%? No, but I was at least at 75% This time, it took me about four days to feel back to normal. By the time I was feeling close to normal….it was time to pack up to move…to an entirely new city. I was limited in what I could do in terms of lifting, but I did move a suitcase that was a little heavier than I thought, and immediately felt weird. I knew I needed to sit my ass down and not lift anything. Which I did…for a few days, then I did it again. My doctor said I irritated the muscles in the pelvic area, take it easy.
I did….a little, but then it was Christmas. I had done no Christmas shopping, my mom was coming to stay with us for two days, which means I had to clean, and I had to cook my contributions to Christmas dinner. Which means, not much rest, but a lot of 800mg ibuprofen.
Finally, I was able to rest for a few days, and I do feel mostly better, after a month.
This procedure was important for me because this is the set up work to see if I can carry a baby. Aside from my left tube being blocked (not such a big deal), my lining is thin and my uterus is small. These things might keep me from carrying my own baby. I go back in April for another scope, to see if the hormones have made my lining thicken at all, and if having the balloon in for 7 days helped with the adhesion/scarring. As much as I try to downplay this as a minor procedure, it is a big deal, and I’m a little worried that all that I had going on immediately after the procedure may affect the final outcome.
We do this a lot, those of us who struggle. We don’t want to break down in front of those who know what we’re going through(or even those who don’t). We don’t want to admit the stakes even to ourselves sometimes in order to keep our peace and a little sanity. But, we need to. We have to come to terms with what is happening with our bodies and what is our options are.
The good news in all of this is: NO Fibroids were found! Two years fibroid free since my June 2013 Myomectomy.
This week kicks off the American Holiday season: Thanksgiving, Christmas, Hanukkah, New Year’s Eve.
Plenty of food, parties, shopping sprees, drinks, and time with family and friends. Time with family and friends usually means people want a life update: How’s School? How’s Work? Did you get the job you interviewed for? When are you going to get married? When are you going to have kids?
Its those last two that have always just irked the hell out of me. When you’re single, or even if you’re in a relationship, you get tired of people asking the same damn question (that frankly isn’t any of their business). “Don’t worry about when I’m getting married. You’ll know when you get the invite” is what you want to say , but usually don’t. Shout out to all the women who do say that to their families. You’re my shero. I know I’m married now, but the memory of that annoying question and feeling of being put on the spot is all too real. After all, I didn’t get married until October of 2015 at 36. There were many a holiday where I was asked about a boyfriend/marriage every five minutes.
Its the same with children. It doesn’t matter if your’re single, dating or married, you get tired of people asking about your plan for procreation. “When you get the baby shower invite, you’ll know”
It becomes even more painful when people don’t even know what they’re asking. They have no idea that by asking you about having babies they are picking at a wound you are trying desperately to let heal, because you can’t have babies. Or you can’t have them without a lot of assistance from medical technology and a lot of cash. So you smile awkwardly, or change the subject, or quickly stuff some more sweet potato pie in your mouth so you don’t have to answer.
It can be rough, but here’s a great piece from the Huffington Post by K.K. Goldbergabout her experince and making it though. As always, you’re not alone.
For all of the years I’ve lived in the DC area, I’ve never been to any official, (or unofficial for that matter) CBC events. Why? I don’t know. Probably the same reason I’ve never been to a HBCU homecoming: I just haven’t. Howard is right down the road, and I have several friends that are HBCU Alumni. There’s no excuse. Yes, I know my Black Card may be in question for never experiencing homecoming. I’m accepting all invites, since it is homecoming season if anyone wants to help me rectify that situation.
This year, I finally made it to CBC, and not just to party. The White Dress Project, a non-profit that advocates for uterine fibroid research and education, held two events and raised the profile of the organization and fibroid awareness.
On Wednesday, a few members of the WDP, along with several medical professionals, participated in a congressional briefing on Uterine Fibroid Education and Awareness hosted by Rep. David Scott of Georgia.
This was really the highlight and the most important part of being at CBC. I had on my schedule, and planned to be there, but unfortunately I had to cancel out at the last-minute. I was definitely in my office with the pouty face because I had to miss it.
This briefing was a major step in getting the cause out there and helping to earn support for officially designating July as Fibroid Awareness Month. Mr. Scott already introduced HR RES. 268 at the end of the last legislative term, “Supporting the designation of July 2015 as Uterine Fibroids Awareness Month”.
The next day, the DMV Leadership of the White Dress Project hosted an event. Part social, part informative. The ladies gathered health professionals, including a therapist, an OBGYN, and a surgeon, who happened to be my surgeon Dr. MacKoul, to answer questions, talk about the epidemic if uterine fibroids, treatment options, and how to deal with the emotional effects of living with fibroids.
The really great thing about the event was not only meeting other women affected by fibroids, but hearing everyone’s stories. Being able to relate to taking hormones, or having to pee every five minutes, or the literal and figurative weight that is lifted once the fibroids are removed. To see how everyone bounced back, and in spite of possibly having fibroids re-appear, or questions on fertility post myomectomy, the determination to move forward, and excitement of these ladies to educate others and advocate on uterine fibroids was amazing.
I was so excited to meet new women, and finally get to meet the White Dress Project founder, Tanika Gray, because……
I will be working with the White Dress Project as an ambassador, working to raise awareness and get Fibroid Awareness Month recognized on a State level!
I’m so excited about this opportunity! Please stay tuned for more updates, posts, and events on my journey with the White Dress Project.
It seems like there is a month or day for everything now: Best Friend Day, Doughnut Day, Wine Day (obviously all days that I am here for). Then there are more serious days: HIV Awareness Day, Earth Day, Take a Loved One to the Doctor Day. Again, all days I can get behind.
And of course, you have Black History Month, Women’s History Month, Breast Cancer Awareness Month, Domestic Violence Awareness Month, and on and on.
There is a new month gaining momentum that I will definitely jump on board with: Fibroid Awareness Month!
That’s right, July is Fibroid awareness month! It know that at this point, July is pretty much over, but its still something worth knowing. This is a new initiative, and its headed by the White Dress Project, a non profit who’s mission is to “galvanize support and promote awareness about the fibroid epidemic among women domestically and globally through education, research and advocacy.“
They are working to get each state to officially recognize July as Fibroid Awareness Month, and they sponsor events to help spread fibroid awareness and offer support for those that have been through or are going through a battle with fibroids. So far Georgia, New York, Florida, and the city of New Orleans are officially recognizing July as Fibroid Awareness month due to the White Dress Project’s efforts.
I love this organization and concept already. As I have said here time and time again, awareness and education a so very important in regards to fibroids (and many other things). Infertility has National Infertility Awareness Week (maybe that can move to a month one day), there is a PCOS (Polycystic Ovarian Syndrome) Awareness month in September, so why not fibroids? The fact that uterine fibroids are such a common disease, but the research and amount of conversation and awareness is so small is a shame. On a wider note, so many gynecological conditions outside of cancer are not discussed in the women’s health discussion.
So even though there are only 5 more days left in the month, there is still time to celebrate an do your part!
Of course, you can start by telling your story. Education and awareness starts with that one simple act.
Want to do more? You can sign this petition petition to receive a presidential proclamation to make July Fibroid Awareness Month.
Its here, the day that many of us love and hate….Mother’s Day.
Most of us have awesome moms, aunts, grandmas, friends and mother figures that deserve all the brunches, flowers, pampering and accolades they will get today. But while we’re doing all of that, on the inside, we might be dying a little.We can’t become biological moms (or not without plopping down thousands of dollars), some of us have lost a pregnancy, or a child, or even lost a mother or grandmother. Some had crappy moms or grew up without a mom at all. Because I don’t live in the same cities as my family, I’m not forced to go out to do anything, which is good, because honestly, this year, I really am not in the mood to pretend. Not only am I working through my infertility feelings, I lost my Nana a few months ago. I loved talking to her, and she was my favorite call to make on Mother’s Day.
So what can you do? How can you handle this day that celebrates everything that seems just beyond your reach if you’re having a hard time?
Here’s what I’ve got:
UNPLUG. Seriously. Looking at Facebook and Instagram all day is not going to do anything to uplift you if you’re already feeling down.
Do something for Yourself. Whatever that means to you. Get a mani/pedi. Go shopping. Do yoga. Binge watch whatever you want. Do what makes you feel good about yourself today especially.
This is not something I would usually say, but….Skip church today.
Now, hear me out: In a lot of churches, especially Black churches, Mother’s day is a big thing. There are luncheons, and special sermons about mothers and mother hood. My old church used to give out single roses. They’d start with Moms, then Grandmas and Aunts,…..then trickle down to all those that “desire to be mothers”. This was always extremely hard for me, even before I had (or knew I had) fertility issues. I was here without my mom, no family around actually, I was painfully single at the time, so I just felt very isolated that day. Get your spiritual connection on your own today by praying, reading and spending time with God alone.
In the end, its up to you.
You know where you are, and what you can handle today, and if this is a time that is difficult for you. Don’t be afraid to say “No” or limit your time out if you’re invited to celebrate.
Celebrate the great relationships you do have today. Enjoy some of the benefits of not having children. (There are several!) Don’t let this 24 hours damage your spirit too much.
What am I doing today? Blogging (obviously), Staying off of Facebook, my calls to my Mom, Aunts, and friends,Cooking, Cleaning my Bathroom…
A year ago, I decided to not just let this blog be an idea, but to actually do it! I didn’t know exactly what to do, or what to say (I still don’t a lot of the time), but I knew that I wanted to share my story and my experiences. I wanted to change the conversation. Hell, I just wanted to have the conversion about women suffering with uterine fibroids and infertility, especially within the Black community.
I wanted to create a space where women can talk about their struggle to conceive and not feel ashamed or misunderstood or be pitied. To talk about battling fibroids and not be dismissed because it’s not that serious”. A space to talk about all the crazy things that life throws at us and not feel alone. I wanted a space to call out Black women in particular: you don’t have to suffer in silence, my sister. Too often we suffer or carry burdens in silence and alone, not thinking there is someone else out there who is right where you are.
If we, as women, don’t speak up, how can we advocate for funding for research, insurance mandates,or educate others on these and other conditions? How can we support each other if no one will step up to say “I’m going through this now too” or “I went through this, you can talk to me.”?
But more than anything, I wanted a space that was fun. Dealing with infertility and other medical conditions can be a lot. Sometimes, you just want to laugh even in the middle of struggle.
My goal is and will be to educate, support, and uplift women.
Admittedly, I have fallen short. Balancing a full-time job and other commitments (throw in wedding planning now!) with regular blogging can be a challenge, but it is a challenge I am more than ready for!
I hope to go into year two learning more about women’s health, and the art of blogging. I want to reach out to others, bring awareness, grow this blog.
Thank Youto anyone and everyone who has followed, commented, re blogged, or just stopped by.
Special thanks to Word Press for the Blogging 101 class, and all of the resources WP provides new and established bloggers.
I’m trying to make sure that I start my year off the right way, with a post.
I have some great news to share: Over the holidays, O and I got engaged! Whoot whoot!! I’m still in a little bit of shock.
This exciting and fun time will bring a welcome distraction from thinking about all my uterus troubles. With planning this wedding and another busy season at work coming around fast, all of the tests and doctors will probably be far from my mind. Of course I will still blog and share my thoughts, but the sometimes consuming thoughts that sweep over us all from time to time will just have to wait.
Don’t worry, this won’t turn into a blubbering wedding planning blog, that’s not what I’m here for. Plus I just head over to weddingwire.com when I want to be a blushing bride to be.
I just wanted to share my good news with all of my Maybe Mama family.
As we come into this Christmas season, I know it can be hard for those of us in the fertility struggle. But have faith!
Infertility, and a fertility miracle are actually a part of the Christmas story. I plan a whole post (or possibly series if posts) about infertility in the Bible, but today, I will quickly talk about Elizabeth.
Elizabeth was Mary’s cousin. The Bible says:
Even Elizabeth your relative is going to have a child in her old age, and she who was said to be unable to conceive is in her sixth month.
Luke 1:36 (NIV)
Elizabeth, who was apparently past her prime pregnancy age (now how old “old” is, I dont know), and everyone had written off in terms of becoming a mother, became pregnant. She delivered a son named John. John the Baptist. She is a part of the Christmas story and the promise of Christ.
We must remember that when the world says “No”, God (and science) says “Yes”. Elizabeth’s baby grew up to be a prophet and leader. All things are possible.
There is hope this Christmas. There is hope for the new year.